So, today I finally heard back from Children's Mercy. They say they are not taking new patients due to the fact that their waiting list is so long (14 months).
I told the lady I didn't care, to go ahead and put us on the waiting list. She didn't. Instead she launched into a speech (that she has no doubt delivered more than once), about how as a military family we would likely not be here in 14 months anyway. As if that weren't enough of a slap in the face (we have been trying for five years to get help for this child) she said that the people on this end who said he needed a neurological examination didn't know what they were talking about; that we need behavioral psychology to make the diagnosis.
Here are the contacts I was given today:
FAMILIES TOGETHER
http://www.familiestogetherinc.org/
501 Jackson, Suite 400
Topeka, KS 66603
Phone: 1-800-264-6343 (KS parents)
(785) 233-4777 FAX: (785)233-4787
E-mail: topeka@familiestogetherinc.org
NEUROLOGIC DISABILITIES SUPPORT PROJECT
http://www.ksndsp.org/
Neurologic Disabilities Support Project
Mail Stop 3055
University of Kansas Medical Center
Developmental Disabilities Center (DDC)
3901 Rainbow Blvd.
Kansas City, KS 66160
Email: jtyler@kumc.edu
Phone: (913) 588-5943
Fax: (913) 588-5942
THE CENTER FOR CHILD HEALTH AND DEVELOPMENT
http://www.kumc.edu/cchd/
The University of Kansas Medical Center
Mail Stop 4003
3901 Rainbow Blvd
Kansas City, KS 66160-7340
Tele: 913-588-5900
Fax: 913-588-5916
AVNER STERN, PHD
http://www.bhsks.com/article_detail.asp?ArticleID=8
Behavioral Health Specialists
8400 W. 110th St., Suite 230
Overland Park KS 66210
(913) 906-9559
RESPONSIVE CENTERS FOR PSYCHOLOGY AND LEARNING
http://www.responsivecenters.com/
7501 College Blvd. Ste 250
Overland Park, KS 66210
Office: 913-451-8550
Fax: 913-469-5266
NEAL DEUTCH, PHD
8575 W 110th ST # 326
Shawnee Mission , Kansas 66210
Phone: (913) 345-2727
KIDS CONSULTS OF KANSAS CITY
Dr. Dawn Bloom
6315 Walnut St
Kansas City, MO 64113
816-926-0642
VALARIE KERSCHEN, MD
(Developmental Pediatrician)
Wesley Pediatric Faculty Clinic
(316) 962-2080 3243 E Murdock St # 200
Wichita, KS
HEARTSPRING
(Dr. Kerschen works from this organization at times)
http://www.heartspring.org/
8700 E 29th St N
Wichita, KS 67226
(316) 634-8750
MAKE A DIFFERENCE INFORMATION NETWORK
'Serving Kansans with Disabilities in One Phone Call'
http://www.makeadifferenceks.org/
(800) 332-6262
and finally, here is the contact information for the social worker I talked to today:
CHILDREN'S MERCY HOSPITALS AND CLINICS
Susan Bushman
(866) 512-2168 (ext. 3699)
